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Saturday, May 14, 2011

Dementia Care Giver Training Programme Report May 2011

First time in Mumbai unique Dementia Care Giver Training Programme was organized by Silver Inning Foundation in association with ARDSI Greater Mumbai Chapter & Supported by Harmony for Silvers Foundation on 6th May to 8th May 2011.This workshop was without any support from government and without any financial support from any organisation.

This three full days 10am to 5.30pm extensive ‘Quality Dementia Care Framework’, Dementia Care Giver Training workshop was undertaken leadership of Mrs. Nilanjana Maulik: Expert Trainer & Director of Dementia Services, ARDSI Calcutta Chapter at Venue : Harmony Interactive Centre , 7th, Floor, Municipal Hospital Bldg , Zaobawadi Lane, Next to Ram Mandir , Thakurdwar,Girgaum , Mumbai Maharashtra , India 400002.

Dementia is a progressive brain dysfunction (in Latin 'dementia' means irrationality), which results in a restriction of daily activities and in most cases leads in the long term to the need for care. Dementia is one of the major causes of disability in late-life.  Many diseases can result in dementia, the most common one being Alzheimer's disease. It mainly affects older people; about 2% of cases start before the age of 60 years. After this, the prevalence doubles every five years. Dementia affects each person and family differently. As dementias progress, there are notable changes in memory, thinking, language, behavior and function — all of which require different skills and strategies. Very few of us have a natural born knack for care giving. Most caregivers have to learn and practice these new skills. It is estimated that over 3.7 million people are affected by dementia in our country. This is expected to double by 2030. The challenge posed by dementia as a health and social issue is of a scale we can no longer ignore. Despite the magnitude, there is gross ignorance, neglect and scarce services for people with dementia and their families.

The importance of taking care of elderly has become more relevant in India due to the increased lifespan and consequent increase in the population of the aged.  As a result of the demographic transition and changing family structure, care of aged is emerging as concern of modern times. The support system and care giving that had been earlier available in the traditional family set up for the elderly has withered away. One of the most important components of developing dementia services in the Country is training health human resources.  We at Silver Inning Foundation like other NGO’s have realize the implications of the increasing aging population in the country, and responded by creating care programmes and delivery services aimed at meeting the needs of older persons. 

The Training of Care Giver for people with Dementia has evolved with parting of knowledge and innovative ways of empowering the family members and professionals to gain skill sets that could help them in Management of Dementia. By undertaking such Geriatric care trainings we at Silver Inning Foundation will achieve our vision of creating an Elder Friendly World where Ageing becomes a Positive and Rewarding Experience.



  • To create awareness about dementia and its various types.
  • To educate volunteers and caregivers to identify early warning signs of dementia and early prevention of dementia.
  • To train volunteers and caregivers to disseminate knowledge about dementia to local population and Senior Citizens.
  • To enhance the capacity & skills of Care givers in managing elderly with dementia.

Who could participate: Social Workers, Medical Professionals, Nursing Students, Family Members, Care Givers, Psychologist, Gerontologist, Geriatricians, Legal Professional, Police Professionals, Senior Citizens and Staff of NGO/Old Age Homes

Eligibility criteria:
  • Minimum Age - 18 years and above
  • Minimum education- 10th  +
  • Must have Passion to serve.

Language of Training: English


The methodology of training would include lecture cum discussions, case presentations, group exercises, role play and efforts would be made to make the training participatory in approach. Pre and post assessment evaluation of the participants on knowledge base would be conducted at the beginning and end of the course respectively.

What participant got:
  • Knowledge & skill for Dementia management
  • Certificate of Participation
  • Free Leaflets/notes 
  • Books on dementia/care giving was made available at Rs.275/175/-
  • Free Volunteer Membership to Silver Inning Foundation & ARDSI Greater Mumbai Chapter


Number of Participant: Total Paid Participant was 35, but only 33 Attended. 2 drop out due to medical reason.

Registration Fees was:  Rs. 700/- p.p. non residential (inclusive of lunches, refreshments and materials). Special rates of Rs.500/- p.p. for Senior Citizens who are age 50yrs and above. Rs.  500/- p.p. early bird discount until 15th April 2011. Last date for registration was 30th April 2011.  There was no refund of registration fees in event of cancellation by the participant.

1)    Sailesh Mishra (Founder President Silver Inning Foundation & Hon. Secretary ARDSI Greater Mumbai; Social Worker & Elder Care/Dementia Care Activist)
2)    Dr. Alka Subramanyam (Psychiatrist, Nair Hospital)
3)    Ms.Suchita Sawant (Prof. of Nursing, Jaslok Hospital)
4)    Anu Vijaykumar (Family Carer & Corporate Human Resources, ACC Ltd.)
5)    Dr.Leena Gangolli (Public Health Physician & Home care service provider)
6)    Nilanjana Maulik (Director -Dementia Services, ARDSI Kolkata; MA Sociology & Social Anthropology; MMHS -USA (Master of Management in Human Services); National Award Winner ARDSI: BEST DEMENTIA CARE WORKER, 2006)

Santosh and other staff of Harmony for Silvers Foundation
Sunita Mall & Haneeta Padam volunteers from iVolunteers


Topics Covered:
·         Introduction to Dementia: Dementia as a Social Problem ; Necessity of Dementia Training ; Present & Future of Dementia Care –Facilities/resources/Policy/Plan
·         Doctors Perspective: Dementia as a disease: definition/types/causes/diagnosis/treatment/Memory screening tools– MMSE/others
·         Psychiatric conditions associated with Dementia- assessment & treatment
·         Nursing Care of Dementia/Alzheimer’s /Elderly
·         Voice of a Carer / Family carer: Dementia Perspective
·         Importance of Nutrition in Elderly/ people with Dementia
·         Dementia Care :  Preventive measures –Brain Boosters/other exercises , Characteristic problems of dementia – in independent living/daily care/medical/mood , Experience of Dementia – all stages on the person/others , Role of carers – all stages ; Practical care day to day- ADL’s /safety , Person Centered Care , Working with carers , Guidelines and principles of communication ; Non-Pharmacological therapies , Dementia & Activities ; Understanding Behavioral changes/Responding positively to difficult behaviors ;Identifying good and bad Care practice

     I.        Pre Training Evaluation:

A.   Total Participant: 33

B.   Participant Gender:
Female: 77 %
Male: 23%

C.   Participant Profile:
Nurse: 18%
NGO: 18%
Senior Citizens: 18%
Others (Medical Doctors, Pastor, Occupational Therapist, Physiotherapist, Psychologist, Professor etc): 46%

D.   Participant location:
Mumbai City: 63%
Outside Mumbai City (Suburban like Mira Road, Virar, Vasai Navi Mumbai): 37%

E.   Participant who knew about the word Dementia: 99 %

F.    Participant background:
Care Givers/ Family Carers: 75%
Non Carers: 25%

G.   Any Dementia Training background:
No Training: 100%


   II.        Post Training Evaluation:

H.   Participant who found workshop Useful: 100%

I.      Which Session/Topic they like most:
All: 46%
Dementia Care: 49%
Others: 5%

J.    Future session required in:

More Interactive, Case Study: 34%

Others (Role Play , Address problem like chocking, bathing etc , Multidisciplinary approach including Spiritualism , Detail Nursing Care , Visit to Dementia Person/ Facility , Cognitive Rehabilitation , Brain Boosters exercise , Detail of Different Stages
)   : 39%

No addition required: 27%


In the end Certificate were distributed to all the faculty and participant.

This programme was managed by Silver Innings, a social Enterprise for Age Care. Silver Innings is working towards creating an Elder Friendly World where Ageing becomes a Positive and Rewarding Experience. Website:

Important References:
ARDSI Kolkata Chapter: 
ARDSI Greater Mumbai Chapter:
Silver Inning Foundation:
Alzheimer’s disease International: 
Dementia Bangalore:
Nightingales Medical Trust:
ARDSI Hyderabad Deccan: 
Alzheimer's Disease in India: 
Swapna Writes: 
iVoluneers : 

1 comment:

  1. wow - it looks like a three days of fun teaching with Dementia Care giving training. It would be a lot of information to cover - as an aged care nurse in the Dementia unit (special care unit) we have a lot of skills to help with caring for the dementia resident. We dont have specific training - more hands on experience!! I could see how good trainng would be.
    Nursing Issues.